https://worldofvca.com/

The Voice of VCA Patients is a non-profit organization focused on improving the quality of life for VCA recipients, their families, candidates and providing information to the donors’ families. The Voice of VCA Patients is a member of the ESOT-ETPO Alliance Network.
It offers a source of real experience and up-to-date information for VCA patients, their families and anyone interested. This includes updates on organ donation, VCA transplantation, medication, social and legal issues.

Contact email: vasyly.rohovyy@gmx.at

TARGET AUDIENCE
➢ VCA patients (face, hand, skin, leg, eye transplants) and their families
➢ VCA candidates, their families, and amputee communities
➢ Donor families
➢ Ergotherapists and physiotherapists
➢ Researchers and doctors/surgeons
➢ Members of bioethics commissions

World's First Whole Eye and Partial Face Transplant

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Attention!  VCA Patients, Family Members and Caregivers - The RTRP Needs You!

The Reconstructive Transplant Research Program, through the Department of Defense has received funding from Congress for the past 12 years to support research in the field of reconstructive transplantation. The RTRP focuses primarily on face and hand transplant, though many of the general research principles would apply to other types of VCA such as abdominal wall, uterus, and trachea transplant. The RTRP released its FY24 funding opportunities this past summer and is now gearing up for review of the applications that are being submitted by researchers in the field. A hallmark of our organization is to include “Consumers” as full participants on our review panels, along with scientists, clinicians, and other specialists. Consumers may be patients, survivors, family members, or caregivers that have experience with a particular disease or injury specific to our programs. The Consumer’s role in Peer Review is to read lay friendly documents that describe the research and evaluate the research ideas for their relevance and impact to patients and the greater community should the research be successful. Consumer perspectives are a very important component of our review process as we strive to fund research with the highest impact for patients and communities. It is not necessary for Consumers to understand complex scientific concepts as scientists sit on the panel for evaluation at that level.

The time period of this review would be roughly early-November through mid-December. Consumers would have approximately 4 or 5 weeks to review ~10-15 applications, and then you would participate in an in-person Peer Review Meeting in Baltimore, MD on December 16-17. The RTRP would cover all travel costs and they would be compensated a flat fee for your time and efforts. If you are a consumer or a VCA Program that has potential consumers that might be interested or need more information contact Jacqueline Roche at jacqueline.roche@gdit.com

Click here to submit.